We’re excited to share that the NORD Scientific Symposium agenda is now available! 🧬 nordscience.org/agenda This two-day event features expert-led sessions on clinical trial design, global research collaboration, pediatric inclusion, and using patient data to fuel new research. Don’t miss out — view the full agenda and register now for early bird pricing at nordscience.org | National Organization for Rare Disorders, Inc. (NORD)

Building patient registries is essential for advancing rare disease research, but it can be challenging for organizations with limited resources. NORD's IAMRARE® platform helps by providing guidance, technical support, and long-term partnership every step of the way. This week, we’re sharing video stories from patient advocacy leaders we work with. First up, The Coalition to Cure Calpain 3 talks about how we helped launch and grow their registry! Learn more about IAMRARE at iamrare.org. | Nation

#RareDiseaseDay is 100 days away, on February 29, an especially rare day! Rare Disease Day is a global awareness campaign elevating the voices and raising awareness of the 300 million individuals impacted by rare diseases across the world. This will be NORD's 15th year as the celebration's official US sponsor. Explore ways you can #ShowYourStripes as we prepare for this international celebration: https://bit.ly/3umz7OG EURORDIS-Rare Diseases Europe | National Organization for Rare Disorders, Inc

#rarediseaseday #morethanyoucanimagine #newbornscreening #healthtech #genomics #genetics #rarediseases #geneticdisorders #screening #diagnostics #healthcare #innovation #growth #ai… | gMendel